Development of a text messaging system to improve receipt of survivorship care in adolescent and young adult survivors of childhood cancer.

This study aimed to develop and examine the acceptability, feasibility, and usability of a text messaging, or Short Message Service (SMS), system for improving the receipt of survivorship care for adolescent and young adult (AYA) survivors of childhood cancer.

Researchers developed and refined the text messaging system based on qualitative data from AYA survivors in an iterative three-stage process. In stage 1, a focus group (n = 4) addressed acceptability; in stage 2, key informant interviews (n = 10) following a 6-week trial addressed feasibility; and in stage 3, key informant interviews (n = 23) following a 6-week trial addressed usability. Qualitative data were analyzed using a constant comparative analytic approach exploring in-depth themes.

The final system includes programmed reminders to schedule and attend late effect screening appointments, tailored suggestions for community resources for cancer survivors, and messages prompting participant feedback regarding the appointments and resources. Participants found the text messaging system an acceptable form of communication, the screening reminders and feedback prompts feasible for improving the receipt of survivorship care, and the tailored suggestions for community resources usable for connecting survivors to relevant services. Participants suggested supplementing survivorship care visits and forming AYA survivor social networks as future implementations for the text messaging system.

The text messaging system may assist AYA survivors by coordinating late effect screening appointments, facilitating a partnership with the survivorship care team, and connecting survivors with relevant community resources.

The text messaging system has the potential to improve the receipt of survivorship care.

Journal of cancer survivorship : research and practice. 2017 Mar 31 [Epub ahead of print]

Jacqueline Casillas, Anju Goyal, Jason Bryman, Faisal Alquaddoomi, Patricia A Ganz, Emma Lidington, Joshua Macadangdang, Deborah Estrin

Department of Pediatrics, Hematology-Oncology, UCLA David Geffen School of Medicine, Los Angeles, CA, USA. This email address is being protected from spambots. You need JavaScript enabled to view it.., UCLA David Geffen School of Medicine, Los Angeles, CA, USA., University of Illinois College of Medicine at Peoria, Peoria, IL, USA., Department of Computer Science, UCLA, Los Angeles, CA, USA., Division of Cancer Prevention and Control Research, UCLA Jonsson Comprehensive Cancer Center, Los Angeles, CA, USA., London School of Hygiene and Tropical Medicine, London, Eng, UK., Department of Pediatrics, Hematology-Oncology, UCLA David Geffen School of Medicine, Los Angeles, CA, USA., Department of Computer Science, Cornell Tech, New York, NY, USA.